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	<title>Comments for Managing Multiple Sclerosis</title>
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	<link>http://managing-multiple-sclerosis.com</link>
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		<title>Comment on Hair loss and MS? by Lana</title>
		<link>http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11065</link>
		<dc:creator>Lana</dc:creator>
		<pubDate>Wed, 30 Mar 2011 06:10:12 +0000</pubDate>
		<guid isPermaLink="false">http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11065</guid>
		<description>In October of 2009 my hair started to fall out in patches and thin.   Patches that are located where my worst migraines were.  Same physical location.

I have felt that I have not been well for about 11 years now.  Last winter my whole right side went numb and tingly/pins and needles, and my hearing buzzed for a whole month. Right from the top of my head to the tip of my toe, like someone drew a line down my body and said &quot;Right Side, go to sleep.&quot;  

I am still in the diagnosis stage. I am actually HAPPY to be getting a diagnosis. Lame really, but no longer will my family call my a hypochondriac. My symptoms have mostly been pain(back, neck, and shoulder), migraines (4-5 days at a time), depression, fatigue and inner ear infections/balance problems (vertigo).

The doctors always said it was just stress migraines and regular pain or problems that you get as you age. And of course the doctors diagnosed depression as depression until last winter. I have regained about 75% on the right side, but have Tone there as well. So far so good still mobile.

Now my hair is falling out again in patches and thinning by the handful. The Dr calls it alopecia areata. They say it has nothing to do with MS, however they also say it is an autoimmune disease like MS.  I think it is part of MS symptoms as my migraines hurt me where the hair loss is. And again, so far so good. My hair is thick and I hide the patches well. :) I want to see if my lesions are where the hair loss is on my MRI.  I really believe that it is a symptom of MS.

God Bless all of you on your journey! It&#039;s good to know I am not alone! :)</description>
		<content:encoded><![CDATA[<p>In October of 2009 my hair started to fall out in patches and thin.   Patches that are located where my worst migraines were.  Same physical location.</p>
<p>I have felt that I have not been well for about 11 years now.  Last winter my whole right side went numb and tingly/pins and needles, and my hearing buzzed for a whole month. Right from the top of my head to the tip of my toe, like someone drew a line down my body and said &#8220;Right Side, go to sleep.&#8221;  </p>
<p>I am still in the diagnosis stage. I am actually HAPPY to be getting a diagnosis. Lame really, but no longer will my family call my a hypochondriac. My symptoms have mostly been pain(back, neck, and shoulder), migraines (4-5 days at a time), depression, fatigue and inner ear infections/balance problems (vertigo).</p>
<p>The doctors always said it was just stress migraines and regular pain or problems that you get as you age. And of course the doctors diagnosed depression as depression until last winter. I have regained about 75% on the right side, but have Tone there as well. So far so good still mobile.</p>
<p>Now my hair is falling out again in patches and thinning by the handful. The Dr calls it alopecia areata. They say it has nothing to do with MS, however they also say it is an autoimmune disease like MS.  I think it is part of MS symptoms as my migraines hurt me where the hair loss is. And again, so far so good. My hair is thick and I hide the patches well. <img src='http://managing-multiple-sclerosis.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' />  I want to see if my lesions are where the hair loss is on my MRI.  I really believe that it is a symptom of MS.</p>
<p>God Bless all of you on your journey! It&#8217;s good to know I am not alone! <img src='http://managing-multiple-sclerosis.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
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		<title>Comment on How should i tell my friend? ? by Lean Hybrid Muscle</title>
		<link>http://managing-multiple-sclerosis.com/multiple-sclerosis-general/how-should-i-tell-my-friend#comment-11063</link>
		<dc:creator>Lean Hybrid Muscle</dc:creator>
		<pubDate>Mon, 28 Mar 2011 02:22:57 +0000</pubDate>
		<guid isPermaLink="false">http://managing-multiple-sclerosis.com/multiple-sclerosis-general/how-should-i-tell-my-friend#comment-11063</guid>
		<description>I understand your situation. Open up it to her. I know she will understand you. It&#039;s not easy to be in your situation. You need someone that could listen to your problems and worries. She  might help you as well.</description>
		<content:encoded><![CDATA[<p>I understand your situation. Open up it to her. I know she will understand you. It&#8217;s not easy to be in your situation. You need someone that could listen to your problems and worries. She  might help you as well.</p>
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		<title>Comment on Hair loss and MS? by Mocha</title>
		<link>http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11060</link>
		<dc:creator>Mocha</dc:creator>
		<pubDate>Sat, 26 Mar 2011 00:50:28 +0000</pubDate>
		<guid isPermaLink="false">http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11060</guid>
		<description>Hello Everyone...

Get Healthy, thank you for your tips.  I was diagnosed 2 years ago, and have been put on Rebif, copaxone, avonex, IVIG and steroids. Nothing has worked.  In fact, the meds had me feeling AWFUL - especially avonex.  I think my body&#039;s med rejection is trying to tell me something.  I&#039;ve decided to stop being a guinea pig and go natural as well. I haven&#039;t taken meds in months.  They work for some people...I&#039;m not one of those people.  Good Luck Everyone...I wish you well. 

Mocha</description>
		<content:encoded><![CDATA[<p>Hello Everyone&#8230;</p>
<p>Get Healthy, thank you for your tips.  I was diagnosed 2 years ago, and have been put on Rebif, copaxone, avonex, IVIG and steroids. Nothing has worked.  In fact, the meds had me feeling AWFUL &#8211; especially avonex.  I think my body&#8217;s med rejection is trying to tell me something.  I&#8217;ve decided to stop being a guinea pig and go natural as well. I haven&#8217;t taken meds in months.  They work for some people&#8230;I&#8217;m not one of those people.  Good Luck Everyone&#8230;I wish you well. </p>
<p>Mocha</p>
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		<title>Comment on Has anyone used Sphingolin to naturally treat MS? by Sue</title>
		<link>http://managing-multiple-sclerosis.com/multiple-sclerosis-general/has-anyone-used-sphingolin-to-naturally-treat-ms#comment-11055</link>
		<dc:creator>Sue</dc:creator>
		<pubDate>Fri, 25 Mar 2011 05:58:01 +0000</pubDate>
		<guid isPermaLink="false">http://managing-multiple-sclerosis.com/multiple-sclerosis-general/has-anyone-used-sphingolin-to-naturally-treat-ms#comment-11055</guid>
		<description>I have just ordered Sphingolin, and intend to give it a go for a few months.
It first got my attention a few months ago and but I was a bit slack in sending away for it.  No I have no excuse and will give it a good trial.   

I have also read the books you mentions, and believe that nutrition is a vital part in reclaiming health, along with a positive mind.   Yes the so called Incurable can indeed be cured.  

Best wishes on your journey to wellness</description>
		<content:encoded><![CDATA[<p>I have just ordered Sphingolin, and intend to give it a go for a few months.<br />
It first got my attention a few months ago and but I was a bit slack in sending away for it.  No I have no excuse and will give it a good trial.   </p>
<p>I have also read the books you mentions, and believe that nutrition is a vital part in reclaiming health, along with a positive mind.   Yes the so called Incurable can indeed be cured.  </p>
<p>Best wishes on your journey to wellness</p>
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		<title>Comment on People with MS taking Copaxone&#8230;&#8230;? by Chuck</title>
		<link>http://managing-multiple-sclerosis.com/multiple-sclerosis-general/people-with-ms-taking-copaxone#comment-11054</link>
		<dc:creator>Chuck</dc:creator>
		<pubDate>Sun, 20 Mar 2011 21:16:09 +0000</pubDate>
		<guid isPermaLink="false">http://managing-multiple-sclerosis.com/multiple-sclerosis-general/people-with-ms-taking-copaxone#comment-11054</guid>
		<description>Triessent is a specialty pharmacy. shared solutions is still there.</description>
		<content:encoded><![CDATA[<p>Triessent is a specialty pharmacy. shared solutions is still there.</p>
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		<title>Comment on Hair loss and MS? by GET HEALTHY</title>
		<link>http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11053</link>
		<dc:creator>GET HEALTHY</dc:creator>
		<pubDate>Sun, 20 Mar 2011 03:29:11 +0000</pubDate>
		<guid isPermaLink="false">http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11053</guid>
		<description>Just take good care of yourself. I have had MS for 15 years.  I tried taking medications and I stopped because the side effects were killing me--depression, muscles weakness etc. 

I decided to go the natural route and it has worked like a charm (thank God!) I&#039;m on a 75-100 % raw food diet. It includes sea vegetables, fruits, vegetables, seeds and nuts.  

The foods that I avoid are wheat, gluten, white flour and sugar, dairy, meat and poultry.  

I also juice fast for 3-10 days once per month and I take supplements ( B12, MSM, B-complex, Black Seed Oil, Fish Oil, Grape seed extract.) 

Today, I have no sysmptoms. I feel great. I had two bald patches that are now filled in.  What I am trying to tell you is forget about searching for a doctor. Concentrate o restoring you health and get super healthy.   

Good luck.</description>
		<content:encoded><![CDATA[<p>Just take good care of yourself. I have had MS for 15 years.  I tried taking medications and I stopped because the side effects were killing me&#8211;depression, muscles weakness etc. </p>
<p>I decided to go the natural route and it has worked like a charm (thank God!) I&#8217;m on a 75-100 % raw food diet. It includes sea vegetables, fruits, vegetables, seeds and nuts.  </p>
<p>The foods that I avoid are wheat, gluten, white flour and sugar, dairy, meat and poultry.  </p>
<p>I also juice fast for 3-10 days once per month and I take supplements ( B12, MSM, B-complex, Black Seed Oil, Fish Oil, Grape seed extract.) </p>
<p>Today, I have no sysmptoms. I feel great. I had two bald patches that are now filled in.  What I am trying to tell you is forget about searching for a doctor. Concentrate o restoring you health and get super healthy.   </p>
<p>Good luck.</p>
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		<title>Comment on Burning / tickling sensation all over my body. What can it be? by Gladys Mendonca</title>
		<link>http://managing-multiple-sclerosis.com/ms-symptoms/burning-tickling-sensation-all-over-my-body-what-can-it-be#comment-11033</link>
		<dc:creator>Gladys Mendonca</dc:creator>
		<pubDate>Thu, 03 Mar 2011 10:52:09 +0000</pubDate>
		<guid isPermaLink="false">http://managing-multiple-sclerosis.com/ms-symptoms/burning-tickling-sensation-all-over-my-body-what-can-it-be#comment-11033</guid>
		<description>Dear Sir,

I am having  burning and pricking sensation whole over body from last 2 years.  I was taking Ayurvedic medicin for some months.  It did not help me much I stopped.  Now I am having lot of problem with this.  what the reason for this 

Regard

Gladys</description>
		<content:encoded><![CDATA[<p>Dear Sir,</p>
<p>I am having  burning and pricking sensation whole over body from last 2 years.  I was taking Ayurvedic medicin for some months.  It did not help me much I stopped.  Now I am having lot of problem with this.  what the reason for this </p>
<p>Regard</p>
<p>Gladys</p>
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		<title>Comment on Hair loss and MS? by Bianca</title>
		<link>http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11021</link>
		<dc:creator>Bianca</dc:creator>
		<pubDate>Mon, 21 Feb 2011 08:56:39 +0000</pubDate>
		<guid isPermaLink="false">http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11021</guid>
		<description>Over the past 2.5 years, I&#039;ve been to so many doctors regarding my random bouts of paresthesia, trembling hands, muscle cramps and fasciculations.  Cardiologists, neurologists, nephrologists, dermatologists.  No one has an answer, but after reading this post along with other research, I&#039;m convinced it&#039;s MS.  I&#039;ve had burning leg/arm syndrome off and on (mainly off) for years even as a child. 

My neurologist suspected MS as soon as I walked in the door, though she didn&#039;t tell me until she ordered the brain MRI for suspected MS.  Thankfully, no lesions were found at that time.  Diagnosis?  Anxiety from a high stress job.  After months of Clonapam, it seemed to pass.  Now, a year later, it&#039;s back  virtually overnight.  The hair loss that started with the symptoms two years ago never fully reversed, and most of the hair in the back of my head is nothing more than fuzz.  

I&#039;m glad I happened upon this site tonight - another sleepless night dealing with these awful sensations.  I&#039;m wondering if those of you on this forum who have been diagnosed with MS, after reading my post, might offer some advice?  Does it even pay to go back to the neurologist at this point?  Is there another type of doctor I might try for diagnosis?

Thanks so much for any words of advice.</description>
		<content:encoded><![CDATA[<p>Over the past 2.5 years, I&#8217;ve been to so many doctors regarding my random bouts of paresthesia, trembling hands, muscle cramps and fasciculations.  Cardiologists, neurologists, nephrologists, dermatologists.  No one has an answer, but after reading this post along with other research, I&#8217;m convinced it&#8217;s MS.  I&#8217;ve had burning leg/arm syndrome off and on (mainly off) for years even as a child. </p>
<p>My neurologist suspected MS as soon as I walked in the door, though she didn&#8217;t tell me until she ordered the brain MRI for suspected MS.  Thankfully, no lesions were found at that time.  Diagnosis?  Anxiety from a high stress job.  After months of Clonapam, it seemed to pass.  Now, a year later, it&#8217;s back  virtually overnight.  The hair loss that started with the symptoms two years ago never fully reversed, and most of the hair in the back of my head is nothing more than fuzz.  </p>
<p>I&#8217;m glad I happened upon this site tonight &#8211; another sleepless night dealing with these awful sensations.  I&#8217;m wondering if those of you on this forum who have been diagnosed with MS, after reading my post, might offer some advice?  Does it even pay to go back to the neurologist at this point?  Is there another type of doctor I might try for diagnosis?</p>
<p>Thanks so much for any words of advice.</p>
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		<title>Comment on need help deciding on MS meds? by gina boyd</title>
		<link>http://managing-multiple-sclerosis.com/multiple-sclerosis-general/need-help-deciding-on-ms-meds#comment-10910</link>
		<dc:creator>gina boyd</dc:creator>
		<pubDate>Thu, 27 Jan 2011 20:08:24 +0000</pubDate>
		<guid isPermaLink="false">http://managing-multiple-sclerosis.com/multiple-sclerosis-general/need-help-deciding-on-ms-meds#comment-10910</guid>
		<description>copaxone has been great for me. good luck</description>
		<content:encoded><![CDATA[<p>copaxone has been great for me. good luck</p>
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		<title>Comment on Hair loss and MS? by Kim</title>
		<link>http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-10882</link>
		<dc:creator>Kim</dc:creator>
		<pubDate>Wed, 26 Jan 2011 02:28:00 +0000</pubDate>
		<guid isPermaLink="false">http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-10882</guid>
		<description>Beside trembling hands and numb hands &amp; feet.  My joints dont work to well and my hair is falling out rapidly.  I recently bought a wig.  I am surprise how a real human hair wig no one would notice the difference (except for very close friends/family that seen me forever)  Virtually flawless to my surprise.  Over the years my symptom got worse... Thank God that I am still alive with my family.</description>
		<content:encoded><![CDATA[<p>Beside trembling hands and numb hands &amp; feet.  My joints dont work to well and my hair is falling out rapidly.  I recently bought a wig.  I am surprise how a real human hair wig no one would notice the difference (except for very close friends/family that seen me forever)  Virtually flawless to my surprise.  Over the years my symptom got worse&#8230; Thank God that I am still alive with my family.</p>
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