Comments on: Hair loss and MS? http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms Wed, 30 Mar 2011 06:10:12 +0000 hourly 1 http://wordpress.org/?v=3.2.1 By: Lana http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11065 Lana Wed, 30 Mar 2011 06:10:12 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11065 In October of 2009 my hair started to fall out in patches and thin. Patches that are located where my worst migraines were. Same physical location. I have felt that I have not been well for about 11 years now. Last winter my whole right side went numb and tingly/pins and needles, and my hearing buzzed for a whole month. Right from the top of my head to the tip of my toe, like someone drew a line down my body and said "Right Side, go to sleep." I am still in the diagnosis stage. I am actually HAPPY to be getting a diagnosis. Lame really, but no longer will my family call my a hypochondriac. My symptoms have mostly been pain(back, neck, and shoulder), migraines (4-5 days at a time), depression, fatigue and inner ear infections/balance problems (vertigo). The doctors always said it was just stress migraines and regular pain or problems that you get as you age. And of course the doctors diagnosed depression as depression until last winter. I have regained about 75% on the right side, but have Tone there as well. So far so good still mobile. Now my hair is falling out again in patches and thinning by the handful. The Dr calls it alopecia areata. They say it has nothing to do with MS, however they also say it is an autoimmune disease like MS. I think it is part of MS symptoms as my migraines hurt me where the hair loss is. And again, so far so good. My hair is thick and I hide the patches well. :) I want to see if my lesions are where the hair loss is on my MRI. I really believe that it is a symptom of MS. God Bless all of you on your journey! It's good to know I am not alone! :) In October of 2009 my hair started to fall out in patches and thin. Patches that are located where my worst migraines were. Same physical location.

I have felt that I have not been well for about 11 years now. Last winter my whole right side went numb and tingly/pins and needles, and my hearing buzzed for a whole month. Right from the top of my head to the tip of my toe, like someone drew a line down my body and said “Right Side, go to sleep.”

I am still in the diagnosis stage. I am actually HAPPY to be getting a diagnosis. Lame really, but no longer will my family call my a hypochondriac. My symptoms have mostly been pain(back, neck, and shoulder), migraines (4-5 days at a time), depression, fatigue and inner ear infections/balance problems (vertigo).

The doctors always said it was just stress migraines and regular pain or problems that you get as you age. And of course the doctors diagnosed depression as depression until last winter. I have regained about 75% on the right side, but have Tone there as well. So far so good still mobile.

Now my hair is falling out again in patches and thinning by the handful. The Dr calls it alopecia areata. They say it has nothing to do with MS, however they also say it is an autoimmune disease like MS. I think it is part of MS symptoms as my migraines hurt me where the hair loss is. And again, so far so good. My hair is thick and I hide the patches well. :) I want to see if my lesions are where the hair loss is on my MRI. I really believe that it is a symptom of MS.

God Bless all of you on your journey! It’s good to know I am not alone! :)

]]> By: Mocha http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11060 Mocha Sat, 26 Mar 2011 00:50:28 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11060 Hello Everyone... Get Healthy, thank you for your tips. I was diagnosed 2 years ago, and have been put on Rebif, copaxone, avonex, IVIG and steroids. Nothing has worked. In fact, the meds had me feeling AWFUL - especially avonex. I think my body's med rejection is trying to tell me something. I've decided to stop being a guinea pig and go natural as well. I haven't taken meds in months. They work for some people...I'm not one of those people. Good Luck Everyone...I wish you well. Mocha Hello Everyone…

Get Healthy, thank you for your tips. I was diagnosed 2 years ago, and have been put on Rebif, copaxone, avonex, IVIG and steroids. Nothing has worked. In fact, the meds had me feeling AWFUL – especially avonex. I think my body’s med rejection is trying to tell me something. I’ve decided to stop being a guinea pig and go natural as well. I haven’t taken meds in months. They work for some people…I’m not one of those people. Good Luck Everyone…I wish you well.

Mocha

]]> By: GET HEALTHY http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11053 GET HEALTHY Sun, 20 Mar 2011 03:29:11 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11053 Just take good care of yourself. I have had MS for 15 years. I tried taking medications and I stopped because the side effects were killing me--depression, muscles weakness etc. I decided to go the natural route and it has worked like a charm (thank God!) I'm on a 75-100 % raw food diet. It includes sea vegetables, fruits, vegetables, seeds and nuts. The foods that I avoid are wheat, gluten, white flour and sugar, dairy, meat and poultry. I also juice fast for 3-10 days once per month and I take supplements ( B12, MSM, B-complex, Black Seed Oil, Fish Oil, Grape seed extract.) Today, I have no sysmptoms. I feel great. I had two bald patches that are now filled in. What I am trying to tell you is forget about searching for a doctor. Concentrate o restoring you health and get super healthy. Good luck. Just take good care of yourself. I have had MS for 15 years. I tried taking medications and I stopped because the side effects were killing me–depression, muscles weakness etc.

I decided to go the natural route and it has worked like a charm (thank God!) I’m on a 75-100 % raw food diet. It includes sea vegetables, fruits, vegetables, seeds and nuts.

The foods that I avoid are wheat, gluten, white flour and sugar, dairy, meat and poultry.

I also juice fast for 3-10 days once per month and I take supplements ( B12, MSM, B-complex, Black Seed Oil, Fish Oil, Grape seed extract.)

Today, I have no sysmptoms. I feel great. I had two bald patches that are now filled in. What I am trying to tell you is forget about searching for a doctor. Concentrate o restoring you health and get super healthy.

Good luck.

]]> By: Bianca http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11021 Bianca Mon, 21 Feb 2011 08:56:39 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-11021 Over the past 2.5 years, I've been to so many doctors regarding my random bouts of paresthesia, trembling hands, muscle cramps and fasciculations. Cardiologists, neurologists, nephrologists, dermatologists. No one has an answer, but after reading this post along with other research, I'm convinced it's MS. I've had burning leg/arm syndrome off and on (mainly off) for years even as a child. My neurologist suspected MS as soon as I walked in the door, though she didn't tell me until she ordered the brain MRI for suspected MS. Thankfully, no lesions were found at that time. Diagnosis? Anxiety from a high stress job. After months of Clonapam, it seemed to pass. Now, a year later, it's back virtually overnight. The hair loss that started with the symptoms two years ago never fully reversed, and most of the hair in the back of my head is nothing more than fuzz. I'm glad I happened upon this site tonight - another sleepless night dealing with these awful sensations. I'm wondering if those of you on this forum who have been diagnosed with MS, after reading my post, might offer some advice? Does it even pay to go back to the neurologist at this point? Is there another type of doctor I might try for diagnosis? Thanks so much for any words of advice. Over the past 2.5 years, I’ve been to so many doctors regarding my random bouts of paresthesia, trembling hands, muscle cramps and fasciculations. Cardiologists, neurologists, nephrologists, dermatologists. No one has an answer, but after reading this post along with other research, I’m convinced it’s MS. I’ve had burning leg/arm syndrome off and on (mainly off) for years even as a child.

My neurologist suspected MS as soon as I walked in the door, though she didn’t tell me until she ordered the brain MRI for suspected MS. Thankfully, no lesions were found at that time. Diagnosis? Anxiety from a high stress job. After months of Clonapam, it seemed to pass. Now, a year later, it’s back virtually overnight. The hair loss that started with the symptoms two years ago never fully reversed, and most of the hair in the back of my head is nothing more than fuzz.

I’m glad I happened upon this site tonight – another sleepless night dealing with these awful sensations. I’m wondering if those of you on this forum who have been diagnosed with MS, after reading my post, might offer some advice? Does it even pay to go back to the neurologist at this point? Is there another type of doctor I might try for diagnosis?

Thanks so much for any words of advice.

]]> By: Kim http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-10882 Kim Wed, 26 Jan 2011 02:28:00 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-10882 Beside trembling hands and numb hands & feet. My joints dont work to well and my hair is falling out rapidly. I recently bought a wig. I am surprise how a real human hair wig no one would notice the difference (except for very close friends/family that seen me forever) Virtually flawless to my surprise. Over the years my symptom got worse... Thank God that I am still alive with my family. Beside trembling hands and numb hands & feet. My joints dont work to well and my hair is falling out rapidly. I recently bought a wig. I am surprise how a real human hair wig no one would notice the difference (except for very close friends/family that seen me forever) Virtually flawless to my surprise. Over the years my symptom got worse… Thank God that I am still alive with my family.

]]> By: Cathy http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-10846 Cathy Sat, 22 Jan 2011 01:16:44 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-10846 Wow, I'm so glad I'm not the only one dealing with the hair loss ordeal! I was diagnosed with MS in 2007 and my hair started falling out in mid 2008. I told my neurologist and he said it was from the steroids I was on earlier in the year. Needless to say, it's been almost 3 years and it's getting worse. I was shaking when I stepped out of the shower just this evening because of the amount of hair I had lost! It's a shame I'm only 24 and I am beyond ready to shave my head, too! Time for a wig! Wow, I’m so glad I’m not the only one dealing with the hair loss ordeal! I was diagnosed with MS in 2007 and my hair started falling out in mid 2008. I told my neurologist and he said it was from the steroids I was on earlier in the year. Needless to say, it’s been almost 3 years and it’s getting worse. I was shaking when I stepped out of the shower just this evening because of the amount of hair I had lost! It’s a shame I’m only 24 and I am beyond ready to shave my head, too! Time for a wig!

]]> By: nancy miller http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-10794 nancy miller Mon, 17 Jan 2011 10:28:29 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-10794 So glad I have been freaking out about my hair falling out at an alarming rate too. Ready to have my head shaved! So glad I have been freaking out about my hair falling out at an alarming rate too. Ready to have my head shaved!

]]> By: Crystal http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-10576 Crystal Tue, 21 Dec 2010 01:32:55 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-10576 I'm glad to have found this site. I've had headaches and this crazy dizzy feeling for 5 wks. Had an MRI and there are about 20-30 lesions on my brain. I'm meeting with a neuro doc tomorrow for the first time. Getting a little scared now. After reading info on so many sites, everything my body has been doing to me for the last 7 years makes since. I've also had hair thinning. I thought it was just because of child birth but its been 2 1/2 years and no change. Well, I guess we'll see what happens tomorrow. I have a little more strength today after reading all of your stories. Thanks for the extra strength. I wish all of you the best. God bless. I’m glad to have found this site. I’ve had headaches and this crazy dizzy feeling for 5 wks. Had an MRI and there are about 20-30 lesions on my brain. I’m meeting with a neuro doc tomorrow for the first time. Getting a little scared now. After reading info on so many sites, everything my body has been doing to me for the last 7 years makes since. I’ve also had hair thinning. I thought it was just because of child birth but its been 2 1/2 years and no change. Well, I guess we’ll see what happens tomorrow. I have a little more strength today after reading all of your stories. Thanks for the extra strength. I wish all of you the best. God bless.

]]> By: Molly http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-8904 Molly Thu, 16 Dec 2010 21:26:35 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-8904 Finally, I feel vindicated!! I was diagnosed in 1995...still going strong. Own and run a B&B, working 24/7. Using daily injections along with supplements. Hair loss? Yep. I asked a hair dresser once and she said her other MS clients also experienced hair loss. Most of the doctors disagreed, but I've always known what everyone else here has known: MS causes hair thinning/loss. Finally, I feel vindicated!! I was diagnosed in 1995…still going strong. Own and run a B&B, working 24/7. Using daily injections along with supplements. Hair loss? Yep. I asked a hair dresser once and she said her other MS clients also experienced hair loss. Most of the doctors disagreed, but I’ve always known what everyone else here has known: MS causes hair thinning/loss.

]]> By: melissa http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-7477 melissa Sat, 04 Dec 2010 21:21:14 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/hair-loss-and-ms#comment-7477 Thank God I found this website!! I have been freaking out for the past two weeks as my hair has started falling out at an alarming rate, but it all makes sense now!!! I am so relieved!! Thank God I found this website!! I have been freaking out for the past two weeks as my hair has started falling out at an alarming rate, but it all makes sense now!!! I am so relieved!!

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