Well my son is barely 2 and a half weeks old, the doctors told us that it looks like he has TS due to the symptoms he has.
He was born 2 1/2 weeks ago, they didn’t notice anything during my pregnancy, but when he was born they noticed a heart murmur so they sent him to the nearest Childrens Hospital to get evaluated by a cardiologist, the doctor found some masses on his heart that looked like rhabdomyomas cause they were multiple, those kind of tumors are associated with TS, also they did a kidney scan and they found several small cysts, but the doctor said that he was not gonna do anything about them since they were so small, also they did a brain scan but they didn’t find anything on his brain, they didn’t find any skin lesions under the woods lamp either, but they still need to do the genetrics test on my husband and me, however the doctors say that they are still looking into his case and he’s still not diagnosed with the disorder.
Has anyone been in the same situation or has children with TSC? Please let me know a little about your experience