http://managing-multiple-sclerosis.com/ms-symptoms/what-can-reasonably-be-done-for-primary-progressive-multiple-sclerosis Wed, 30 Mar 2011 06:10:12 +0000 hourly 1 http://wordpress.org/?v=3.2.1 http://managing-multiple-sclerosis.com/ms-symptoms/what-can-reasonably-be-done-for-primary-progressive-multiple-sclerosis#comment-1087 Hannah Tue, 30 Jun 2009 06:03:19 +0000 http://managing-multiple-sclerosis.com/ms-symptoms/what-can-reasonably-be-done-for-primary-progressive-multiple-sclerosis#comment-1087 My mother has ppMS and has experienced the same treatment as you. Unfortunately treating your symptoms is all that can be done, especially as you have had this for 9 years. There is a lot of research into new drugs for MS but not for the progressive types only the relapsing remitting types. My mother had a few steroid courses which showed an improvement for a short term period, but I would be very cautious about steroid treatment as they come with serious side effects such as hypertnesion and osteoporosis . I am very pleased that you are doing better than expected, and I hope you continue to do so. I'm sorry I can't offer any more help or ideas about it - I'm sure your neurologist is doing the best he can. My mother has ppMS and has experienced the same treatment as you. Unfortunately treating your symptoms is all that can be done, especially as you have had this for 9 years. There is a lot of research into new drugs for MS but not for the progressive types only the relapsing remitting types. My mother had a few steroid courses which showed an improvement for a short term period, but I would be very cautious about steroid treatment as they come with serious side effects such as hypertnesion and osteoporosis .
I am very pleased that you are doing better than expected, and I hope you continue to do so. I'm sorry I can't offer any more help or ideas about it – I'm sure your neurologist is doing the best he can.

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